Hey everyone! I am still an inpatient
at Children's Hospital Boston. While we know I need to have my foot
debulked by Dr. Spencer in about a month, I also have another Klippel issue occurring simultaneously. Perhaps this one is most frustrating,
as we are currently unable to get to the root cause of it despite heaps of imaging and blood tests; my back and buttock have been hurting a
great deal – and this goes beyond a typical daily chronic pain
level. At the moment, I am currently inundated with pain medicines
like
oxycontin and oxycodone, so I apologize if my writing is not all
that cohesive. One of the things I like about my Dr.'s here is that
they sincerely trust me – at least they certainly seem to! As far as when to
go home and what not, they are mainly leaving that decision within my anxiety-ridden hands...
While emotionally I am ready to leave instantaneously, my mind is
telling me this is hardly the right thing to do. Even on the hefty
dosages of pain medicines, I am still sporting some abnormal pain on
the previously aforementioned areas. Prior to leaving, I would like
to see the pain ease up, this way I am able to make sure things are
not heading in a more vile direction as opposed to a more pleasant one..perhaps within a couple of days I
will be ready to pack my bags! Either way, I refuse to go home on this much pain
medication as I believe that to be highly risky in terms of
addiction.
I miss my dog immensely, not to mention the
freedom of not being an inpatient...as I always do once being here for more than a few days at a time! One of the minuscule things that annoys me
greatly are the nurses being all "you" every two hours or so about
how much you ate/drank/went to the bathroom. They, of course, are
just doing their job – and I appreciate that. Nurses, in my opinion
anyway, are the backbones of hospitals in general... However, when they
ask me those questions, part of me just wants to retort “None of your damn business! I am 23 for heck's sake!” Never in my wildest dreams,
however, would I ever do something like that in ten million years!
Because, like I said, they are merely just doing their job and
deserve to be treated with a great deal of respect...in no way would
I actually take out my internal frustration and misplace it towards
them. At this point, though, I really just miss everything about home
life and am anxiously awaiting the time in which I feel safe enough to
resume my life there. It's about 3 AM here, and I should attempt to
sleep prior to the doctors making their rounds this morning. In the
meantime, however, wishing you all well! I hope this post was not too
difficult to interpret given my fuzzy state of mind!
Lots of love,
Arianna
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