* I am currently inpatient for infection as I write this
We were on our way there. It shouldn't
be much longer than 20 minutes or so, mum was saying. 20 minutes or
so felt like three exceedingly long lifetimes at that point. It felt
like steak knives were being jabbed into my thigh (outer and inner)
and left buttock. Every second in which I was forced to endure the
pain was excruciating. I was rather frightened as I knew another 20
minutes there could have a hazardous impact on my rapidly weakening
condition with cellulitis – 20 minutes was enough to go from awful
condition to an absolutely nightmarish one. There was nothing else we
could do as we were already in Boston, mere minutes away from the
hospital. Yet, there was unexpected traffic on Sunday during an early
afternoon due to a bridge somebody had decided to shut down.
I sat in the backseat of the car; my
crying was incredibly heavy and persistent, accompanied by occasional
shrieks stemming from a concoction of pain and frustration. In that
moment, I was fighting for my survival and that was the way in which
my inner warrior (or lack thereof) chose to manifest itself. My poor
parents had the great misfortune of having to listen to me the
entirety of the way in a cramped car (a 1979 trans am, our other,
much more spacious car, was broken). It must have been an arduous
task as seeing somebody you love in such unrelenting pain is a form
of torture in itself. I was freezing and trembling all over, and the
pain was growing worse by the instant. I didn't know how to cope in that moment. Sanity was a friend from my past that was long gone by now.
If
I am being incredibly honest, I wanted to die and be freed from all
my misery at that point. Please mom, I said. Pull over and just kill
me. You and Dad. If you love me you'll do it. I have great trouble
writing this even in this very moment, as it brings back the most
horrific of memories. However, when the pain is so extraordinary and
uncontrolled and your temperature is so exquisitely high, you are
certainly not thinking coherently. Can you imagine what my parents
must have felt though? They had been through this with me numerous
times before, but never had I requested for them to kill their own
daughter. Before you think me absolutely mad, please try to
understand that it literally felt as though a bevy of steak knives
were impeding upon the infected part of my body. Try to understand
that I had a headache so prominent and painful, along with legs that
felt like mush and difficulty breathing due to the exasperating
infection. I was out of my mind, but with due medical reason.
We eventually arrived there, and the ER
at CHB took immediate notice of my down-trodden state. They wasted no
time triaging me and then getting my condition under control as my
temperature was just under that of 105. On the way to the ER, I said
something to my parents that I know was rather hurtful to them. At
one point, someone in the car made an innocent remark in regards to
my relentless shrieking and hysterical crying.
“You have no right to say anything,”
I said. “This is your fault this is happening to me. You guys were
the ones who did this to me.” I know what you are probably
thinking. What an absolute ingrate this young woman is to have made
such a malicious comment. And, admittedly, that hadn't been my first
time making a comment like that during a time of medical urgency. For
me to imagine you calling me an ingrate is probably somewhat
mock-able, as you are probably thinking much worse of me at this
moment. I get it, I truly do. Sometimes I hate myself for making
comments like that, for making my parents feel as if I even think
they are partially responsible for my medical condition when I know
they would have never wished this upon me.
I have a big heart, I swear I do. So
where do comments like that come from? I was physically sick and
emotionally a wreck, but that is no excuse. In those moments, when
such medical injustice is upon me, it's almost like I look for
someone to blame out of anger. My parents, however, are not those
people. No one is to blame, that much I know. Still, my anger got the
best of me and that in itself is very dangerous. My infections will
come and go, but those are the kind of words that haunt a parents
forever. I sincerely wish I knew how to be a better daughter, but I
don't. I am trying, though, if not somewhat aimlessly.
To parents who of children who have
this condition, we know it's not your fault. We know you would change
things a million times over if you could. I cannot take back the
remarks I've made and the hurt in which I've cast upon my family, and
that too is something in which I have to carry around with me for
eternity. - A
Arianna I know your parents know that you didn't mean it. I know if my kids ever say something mean, they don't mean it, they are acting out of duress of some kind and I let it roll right off me. I know they do, too. When people are in physical pain such as yours, it is impossible to take anything mean they might say seriously. Yes, its hurtful at first because people have feelings, but easily dismissed, no one could ever hold a grudge against you, and your parents are the very best kind of parents. They have nothing but love for you, when you are in pain, they can't stand it. Could I go as far as to say that when you say something terrible and human, it helps the situation? I think it does....it helps them not die of sadness over your pain, and instead get some adrenaline going and helps them demand the best for you. I know this sounds somewhat unusual, but I think all things that happen are happening to help the situation which is your pain and getting it under control. Everyone loves you, and wants the best for you especially when you are not yourself and in pain and screaming mean things. They KNOW, you don't mean it, you are just in pain and they understand that. Plus its just you being feisty and that means, you're alive and fighting this. (((((((((HUGS)))))))))))
ReplyDeleteI think in this condition we are "normal" Arianna. I have talked with many others that suffer as we do and have. You've summed up moments of deep conversation in your post but, you can not take sole passion of the actions, words and thoughts that your writing about. I think we have all experienced them or are going too,,,, I think we're normal,,, at least I feel even more normal after reading your post.... Thank you
ReplyDeleteYou carry enough. Your words are not those spoken to hurt. These were a cry for mercy which your parents all too well understand. They too have shouted, pleaded for mercy for you. Instead of doing so before you, they likely stood before God speaking from their heart. Still your heart lovey lady. Thoughts abound.
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