"Maybe gratitude has nothing to do with joy. Maybe being grateful means recognizing what you have for what it is. Appreciating small victories. Admiring the struggle it takes simply to be human. Maybe we’re thankful for the familiar things we know. And maybe we’re thankful for the things we’ll never know. At the end of the day, the fact that we have the courage to still be standing is reason enough to celebrate." -Grey's Anatomy
Arianna Faro, 23-years-old
Diagnosed with Klippel-Trenaunay Syndrome at birth
Patient at Children's Hospital Boston/have also volunteered there in the past
Full-time college student majoring in psychology, planning to specialize in OCD and other facets of abnormal psychology
Someone with great parents who always put their daughters' health first (I have two sisters)
I also have the best friend ever; a toy poodle named Fe June. The one and only true love of my life.
Passions are writing, fashion, animal rights, and learning; knowledge is power
I also have a deep desire to travel throughout the world someday
Passions are writing, fashion, animal rights, and learning; knowledge is power
I also have a deep desire to travel throughout the world someday
& I accept people of all kinds.
https://www.facebook.com/diariosde.abordo
ReplyDeleteHi Arianna,
ReplyDeleteYesterday I found your blog after receiving a letter from the hospital about the Sirolimus therapy. I am glad to see that I am not the only one with KTS. Well, I am not glad we have it, but you know.. that we are not alone in this. In the Netherlands I am one of the few who has KTS, but my case is unique here because of other complications. So it is very hard to talk to someone and be understood. I hope you are doing very well now and maybe one day we can talk about our experiences. I wish you the best of luck trough your journey. Greetings, Francy