Hope you all had a lovely Memorial Day weekend. A belated thank you to everyone who has served on our behalves. 

& If that is not enough, just remember...

Elmo would want you to. ; )

Follow @AriannaFaro

Not too long ago, I did a post featuring Carla Sosenko, an extremely talented memoir writer who has KTS. She did an amazing article on dating with KTS that was featured in Marie Claire, and ever since then she has been one of my role models. To read that post and for the link to her full article on dating with KTS, click here.


To my delight, Carla has just written another memoir entitled 

"Absolute Transparency, or Love in the Time of Google" 

She speaks about KTS some more, and at one point writes:

‎"Living with K-T is nothing if not a balancing act: say too little, I feel like a fraud; say too much, I am vulnerable." 

I genuinely couldn't have put it better myself.

Well done, Carla! The KTS community is so incredibly fortunate to have you!

Here is the link to her new article. 

It's always helpful and comforting to read the words of those who are facing similar struggles to ourselves. Because of this, I thought it would be useful to some to ask those with KTS a question in regards to their condition.

What are some things you tell yourself when you are feeling insecure because of your KT?

Below are the responses I received; each number represents a different person.

1)That god made me for a reason and he makes no mistakes.so he loved me so much that i should love myself and pick something on my body i love and add so on

2)If your insecure about your Kt, when I was little i used to use concealer on noticeable spots to cover it up. But other than that after awhile I got used to it and I don't mind it at all. My KT hand is actually smaller and I actually like it smaller!

3)When I was little, my older brother told me that I was given this because I was strong enough to handle it. I've been repeating it to myself ever since.

4)that things are only given to those tough enough to handle it.

5) I try to think that there's not much I can do about it, I will always have KT. I have always found it very important to dress and look as good as possible, hopefully me being me helps others from seeing me as "the girl with the strange leg", and see me as Marie!!  I do also try to chanalise what I'm feeling into something good and productive; such as starting up a Network for people in Sweden with KT! I make something positive with one of the most negative things in My life....
Though, I'm only human and KT makes Me feel very blue at times..

6) I have always told myself. At least I have a leg and no one in this world is perfect. We are all born with something..mine is just more noticeable.

I try to remind myself that there are always people who are suffering much more than me, so while I am definitely dealing with something very hard, I should be grateful I have 2 legs and 2 arms that work. I also try to hold my head high and proud when I notice people staring and tell myself to be strong. Some days it works better than others.

My answer: That everyone faces struggles of some sort, this just happens to be one of my bigger problems. As trite as it sounds, I am lucky enough to have basic first world resources that others who live in utter destitution lack. Somewhere, people are lacking drinking water, and are severely dehydrated while I can just walk down my hall and have easy access to some. In reality, everyone lacks in some area or another. 

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To be nobody but yourself in a world which is doing its best, night and day, to make you everybody else means to fight the hardest battle which any human being can fight; and never stop fighting.  -e.e. cummings Follow @AriannaFaro , 1955

Garden @ CHB

These are a couple of pictures I snapped with my phone a little while back of the garden at Children's Hospital Boston. I remember when I was hospitalized for several weeks at six years old and my mom or a nurse would wheel me around here..it brings back beautiful memories. When I look at where I was in terms of my KT then and where I am now, I feel like one of the luckiest girls in the world. Follow @AriannaFaro

Invisibility and Illness

"Please put this as your status for at least 1 hour if you or someone you know has, or has had, an invisible illness (Diabetes, Crohns, PCOS, Rheumatoid Arthritis, Kidney Disease, Epilepsy, Fibromyalgia, MS, COPD, Lupus, Depression, M.E, Autism etc). Do it for all who have an invisible illness. It's a daily struggle feeling sick on the inside while you look fine on the outside. x"

People who struggle with an “invisible” illness of some sort learn to view the world and the people within it in a different way. We become less trustworthy of

appearances as we know better than most that nine times out of ten, everything is not what it seems.   

I am almost done with this semester of school completely. Aside from taking some summer classes to keep my mind on point, I am going to be utilizing this space more. A while back, I had a clear view of what direction I wanted this site to go. At this moment in time, however, I am contemplating some other ideas. Please bear with me right now.

<3