Thursday, November 29, 2012

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It's a weird feeling to be scared of your own two hands – only when this fear was evoked deeply within me did I become aware of the power in which they held. These were the hands that made my bed, drove me to school and back along with various other mundane tasks – yet, in reality, they were so much more. They had the power to choose whether or not I would wake up the next day – and sometimes, being in a deeply depressed state, I couldn't honestly say I always wanted to. Death, it seemed, was simpler than living. All of the anxiety and negative feelings that relentlessly filled my mind could be gone – just like that, with just a few simple actions. I think it's important for me to make a distinction here, however. It wasn't that I wanted to die, necessarily, it was just that I didn't want to continue living in the state I was in.

On of my more notable nights, I ended up on a depression forum. I ventured into a thread in which people spoke explicitly about their desire to die – however, whether it was for religious reasons or what not, they had chosen not to take their own life. Rather, they were waiting for the end of the world to happen in 2012 – not only were they waiting, but they were passionately anticipating it. I should have clicked off the page immediately, but my depression kept me fixated upon the thread. When I told my counselor the next day, she said “this is the kind of depression people get hospitalized for.”

I was scared numb after she said that. How had I gotten to this point? How had I morphed into a simpering young person full of zest for life to that of a besotted teenager? There was so much in which I didn't have the answers to, and so much in which my depression was preventing me from seeing.


  

Wednesday, November 28, 2012

Wednesday, November 14, 2012

Went to two different appointments today - I'm good.

Iron level is adequate due to daily pill supplements.
Am good to stay on Meloxicam 15 mg a day which has helped a lot with my chronic pain. In fact, I credit it with allowing me to have somewhat of a normal life back (mainly going to school).

The one thing I hate is when they ask about all of the pills in which I am on - of course this is vital information for their records, but I still feel insecure about all of the mental health medication in which I am on. Even though said doctors always maintain a poker face, I am scared that inside, they are judging me. Like I said, it's my own insecurity and not based upon actual happenings, so I'll just leave it at that.

For now, though, things are going beautifully with this lovely leg of mine & I am very fortunate. 

Just my thigh area ( : The scar you see is from a debulking procedure I had done an extremely long time ago.

A side of my KTS anyone has really seen. Those lumpy raised areas extend from my upper thigh all  up and over my left buttock. This makes sitting painful; I usually have these legions worked on every couple of years. I am currently coming up to "that time" again, but I have been doing so well KTS wise that I am reluctant to go back to the hospital - for anything (as if that even needed to be said).


Sometimes I take the rarity of my body for granted. I am just so used to it that its appearance on a day-to-day basis just doesn't faze me. Only when I take pictures, however, do I really focus on the unique design and features that inhibit this portion of my body. It is something seldom seen, and I am happy to share : )



Arianna


Sunday, November 11, 2012

I have added some new pictures to the patient picture's section. Thank you to those of you who have sent yours in thus far; it's really fantastic to have one collective page featuring the different cases photographically. I also know it is not easy to expose yourself in such a way, so I really appreciate the courage in which you guys have displayed.

If you would like yours added,
you can email me at faroa@merrimack.edu

Hope you all had a lovely weekend.

Arianna

Friday, November 9, 2012

Hi everyone <3 p="p">
I still have patient pictures to put up which I will get to at some point this weekend. This school semester has been utterly exhausting; between various mental health appointments along with a full school schedule and other external stresses, I have felt so incredibly fatigued.

Will write more later during the weekend.

Sunday, November 4, 2012


Hey all. So just a couple of quick things I would like to say.

  1. Congrats to Adam and Jessica Cole; they just got married yesterday. I had the pleasure of meeting them both at the KT Conference this summer, and one would be hard-pressed to find souls as kind. Some of you may know Adam from the KT Foundation; he does a ton of work for it! Click here to visit the official site and here to visit the facebook page.
  2. Thanks to those who have sent pictures in – I am extremely pleased with how well that page is coming together. A couple of more people have recently sent pictures in that I have yet to post but will within the next couple of days – I apologize, right now is an extremely hectic time at school (about a month out from the end of the semester)
  3. Last but not least (how clich̩ am I), please check out a friend as well as KT patient's art page here Рand be sure to click like (which will be a no-brainer once you lay eyes on her exquisite work). Besides being an amazing artist, she also does some work in which proceeds go towards helping those with KT.