Seems these are rather tumultuous times
for me and a multitude of my Klippel sweethearts. Many of them are
inpatient at present; as of today, I am too. Once again, I am
fatigued emotionally and physically. As for what I am being treated
for, I cannot say with total certainty at this point in time. We have
yet to rule out infection/deep clot/both. The good thing is I was
able to catch it before I got systemic...which very well may be
attributed to the 26 day intensive antibiotic regimen I have been on.
In other words, that may be masking
things from getting out of control.
In my last post, “last evening”, I
chronicled my initial flare-up that led to this hospitalization.
While the overt systemic systems died down at rapid speed, I
experienced yet another problem this morning. I awoke around 1 in the
morning to a throbbing in my thigh that felt cellulitic (based on
previous infections). Several hours later and the pain persisted.
Between the butt and the thigh both being in abnormal pain, I felt it
adamant to be seen and now I am here yet again. There is no striking
redness, although there is a feint tint of some.
While I am not one to ever speak poorly
of the beloved hospital that has saved my life dearly so many times,
I must say I was not impressed with a couple of the vascular
anomalies staff members today. I will not mention names, nor go into
all of the specifics, but I was talked down to quite a bit (as was my
mother) and even toyed with mentally to a degree. I am not referring
to the specialists themselves by any means, but rather a couple of
the people who work beneath them. Both who mistreated me (especially
knowing the complexity of my situation these past 6 or 7 months)
lacked empathy and compassion entirely. I just have to remember that
I am indeed here for the specialists who are so expert at their
crafts.
For now, pain medicine awaits along
with bedtime. It was another 8 hour seemingly endless day in the ER
prior to being placed into a room.
As always, love to you all - A
im so sorry you had to go thru that sweetie I know what you mean and it really makes things worse for us in pain and being so frustrated. Im not one that stood up for myself but im getting better at it. my mama like yours turns into this mama bear and pitches as she calls it one of her mama fits and they scramble to get it done or get a doctor when she goes in that mode.im sure you have seen the same with your mama. I thank God for mine cause she has got my life saved a few times when I probably would not have made it. our moms have shown us how to be strong and get thru it all honey, I will be praying yall to get thru this quickly. love yall <3
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