Hey everyone,
Last time I wrote I was feeling
particularly apprehensive in regards to my current health with
Klippel-Trenaunay Syndrome. Since then, I have been admitted and
released from Children's Hospital Boston. Normally I am inpatient for
a longer time, so it all kind of feels like a blur, but I am
incredibly thankful to be home in my own environment.
Long story short, I have something
called thrombophlebitis. Thrombophlebitis
is swelling (inflammation) of a vein caused by a blood
clot.
The symptoms are as follows:
- Red, swollen, and irritated skin and tissue around the area, such as along an affected leg.
- Painful, warm, tender, or hard sensations in the area.
- Pain or tenderness may increase when you put pressure on the affected area.
- The swollen vein may feel like a tough "cord" under your skin.
- Flexing your ankle may also be painful.
- Swollen foot or ankle, especially if only one side is swollen.
So,
I am off antibiotics and can be on Ketorolac if I choose however
right now my pain does not warrant taking one.
Enjoy
a picture below of an incredibly frustrated me in the emergency room
after seven hours. Ultimately, it ended up being a total of 12 hours
in the emergency room. None of my doctors were there, and this meant
telling copious amounts of professionals what KTS is in the first
place. My favorite was when one of the female doctors asked me how we
should treat this; yeah, that happened. Generally, Children's
Hospital Boston is a shining star as far as medical care is
concerned, but let's just say this trip was less than stellar (other
than the impeccable ER and floor nurses). Once my regular doctors
were involved, however, things went smooth and I felt safe and
assured.
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