It wasn't as surreal as you would
imagine it to be – at least it didn't feel that way. It was almost
as though we picked up where we had left off...we had first met in
person in Minnesota a couple of years ago. Skype, Facebook, texts and
phone calls were a constant between us ever since then, and perhaps
that it why it was not quite so overwhelming to see her in person yet
again. As the car pulled up, I saw Sinead and her mom waiting for me
outside the Longwood Inn. Because I am on so many medicines for my
KTS at present, I have been battling feelings of nausea, sweating,
insomnia, etc. I had only slept about 3 hours the night prior and
felt so incredibly fatigued, but I did not care. I did not care that
my leg was aching beyond belief and that my butt still felt sore from
the last infection and surgery. Nothing was going to get in the way
of me seeing one of my best friends for the first time since the KT
Conference a couple of years back.
It was so nice to see one of my dearest
friends I had met from the online medical community. I wish I had
felt better, but unfortunately I did not have a say in the matter and
tried to ignore all of my yucky symptoms to the best of my ability.
Having friends who understand your daily struggles has been so
incredibly life-changing, and it makes me feel as though I am not so
isolated. Below is a couple of pictures from Sinead's visit to
Boston. - Arianna
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