Monday, August 13, 2012


Quoting directly from the KT Foundation Facebook page itself:

"These are exciting times for the KT community. Doctors have recently discovered the cause of CLOVES Syndrome (a closely related syndrome to KT) bit.ly/Pen6PT, we're very close to knowing the exact cause of KT, new medications are currently
being tested, and surgical options have become more successful at helping some with KT. Now is the time that we need to grow. We're currently at 196 likes, but we need many more. Please share this page with ALL of your friends and family and let's grow this KT community!"

Please be so kind as to like the main website if you haven't already; strength in numbers!

Also, don't forget to check out the main website for the foundation. I recently had the chance to meet Adam Cole, one of the main people who runs the foundation, along with his fiancee Jessica at the biannual meeting in Minnesota. All I have to say is that they are two of the most upstanding, genuine people I know; their dedication and commitment to helping those with this condition is absolutely unparalleled and the KT community is so incredibly fortunate to have them.

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