Thursday, July 18, 2013

I'm Back

Since I last updated, I was admitted to the hospital again because I was having a hard time recovering from the last infection. It was not the infected area that was hesitant in recuperating, but rather my body as a whole. I felt so incredibly weak and nauseous among other things. I was severely dehydrated and not eating. However, I am doing much better now and I figured I would kick off this post with a new picture of how my C02 lasered area healed (as some of you may recall I had this work done by Dr. Alomari in June).

Below are before pictures (just a couple of days after surgery) and now. I'll update more soon.

- A




Monday, July 8, 2013

Heartache

My problem is that I want to inflict good upon others but cannot effectively do so until I am in a place of wholeness and wellness myself. The journey to getting there seems to be intolerable, and I feel as though I am held captive in a pit of circumstances that are of my own doing. Those words are, indeed, important: my own doing. Depression will try to tell you that.. Tell you that all of the bad things that have happened to you are a result of your own unworthiness, and that you deserved for them to have happened to you.

Truth is, I didn't choose to be born with a debilitating illness that has plagued not only me but my loved ones. But, inside, there is a voice that tries to tell me maybe I did.

After 16 days in the hospital, I was released. I am far from well, but I felt I could handle the thunder on my own. Or maybe I didn't, maybe I just hoped against all odds. These past hospitalizations have caused me to miss so many significant days, like my mom's 50th birthday. Do you know what my mom did on her 50th birthday? She cried, and it was over me. That day I woke up in the hospital and got extremely sick with the worst cellulitis infection I've had thus far. I know there was chaos, and lots of medical staff, but that's not what sticks out in my mind; no, all I remember amongst the blurred vision from tears is seeing my mom cry. It stabs me in the heart. I missed my parent's anniversary and father's day, too. I don't care about my own satisfaction I just want to help others who have been victimized by my condition be well, to live as though it didn't exist.

So, I went home after 16 days inpatient. Not 18, 19, 20, but 16. And, I would do it all over again for my sister. I went home because yesterday was her birthday (and my dogs!). She kept saying she didn't care if she had a party, but I knew she did; she just may not have realized it. I only made a small appearance at her birthday, but I know she was happy and did have some much needed fun. Me being in the hospital, after all, greatly impacts her life too and she has been exposed to harsh realities younger than some of her peers. Even though I am sitting here in so much pain and feel so feeble, I would come home again a thousand times over for her and her happiness.


I just want to help everyone be happy.

Saturday, July 6, 2013

15 days inpatient

I am currently still inpatient at Children's Hospital Boston because of the ferocity of the cellulitis infection I endured several days ago. I believe today marks my fifteenth day here thus far - just from this one admission. Basically, I am dealing with a massive clot in my foot and a widespread cellulitis infection in my left buttock. Never before has an infection caused me this much pain for this amount of time. The longevity of this infection is what makes it unique from all the others ones I have had thus far. Dr. Fishman, who I saw today, said this is the worst infection I've had yet and it will take a long time to return to baseline.

However, I have made heaps of progress and should be going home any day now (with picc line in tow, of course). My blood pressure is stable as is my temperature, and we have gotten the pain under control. I am even starting to walk with ease all by myself, something in which I was not sure I'd be able to do for a long time again!

With that said, I still feel crummy overall; fatigue and pain are rampant throughout my body. I must say though, I a very proud of myself for coming out victorious despite the events that have occurred in the past couple of weeks. I know I will continue to progress and I look forward to catching a glimpse of summer once I am released from here.

Hope you all are well - XOXO
-A