Quoting
directly from the KT Foundation Facebook page itself:
"These
are exciting times for the KT community. Doctors have recently
discovered the cause of CLOVES Syndrome (a closely related syndrome
to KT) bit.ly/Pen6PT, we're very close to knowing the exact cause of
KT, new medications are currently
being
tested, and surgical options have become more successful at helping
some with KT. Now is the time that we need to grow. We're currently
at 196 likes, but we need many more. Please share this page with ALL
of your friends and family and let's grow this KT community!"
Please
be so kind as to like the main website if you haven't already; strength in
numbers!
Also,
don't forget to check out the main website for the foundation. I
recently had the chance to meet Adam Cole, one of the main people who
runs the foundation, along with his fiancee Jessica at the biannual meeting in Minnesota. All I have to
say is that they are two of the most upstanding, genuine people I know; their
dedication and commitment to helping those with this condition is
absolutely unparalleled and the KT community is so incredibly
fortunate to have them.
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