Kisses for KTS (Klippel-Trenaunay Syndrome)

"Electric kiss I'm gonna change the world with my lips One voice forever We'll live together Peace, love, solitude and happiness Electric kiss"

Monday, October 27, 2014

Posted by Arianna at 10:46 PM

Arianna: Hey everyone! I'm a 23-year-old college student who was born with KTS (Klippel Trenaunay Syndrome). At 18, I was hit really hard with anxiety and depression. I am fortunate to have had support from amazing professionals and family during that time.I want those who are also struggling with chronic/mental illness to know there is indeed hope for them, which is why I am majoring in psychology at Merrimack College. ( : In terms of this blog, I hope to garner awareness as to what Klippel is and the emotional toll it can have on its patients/family members. I am treated by the outstanding Vascular Anomalies team at Children's Hospital Boston.

(no title)

Flashback pictures from one of my debulking surgeries. How far I have come! : ) Much love to every nurse, doctor, friend, patient and fami...
Cloves Awareness Day! Watch Dr. Alomari Speak on Discovery...

Hi everyone! I know I have not written as frequently as I have in the past, but I promise you I am working on some pieces in which I will ...
(no title)

So the other night, I took some pictures in which my KTS leg was apparent. I posted one on a social networking profile of mine and was a...
(no title)

Long time no write – not intentionally, however! School has proven to be a daunting task – by the time I arrive home I just want to sleep...
Some Debulking Pictures

Hey all ! Here are some debulking pictures from a few weeks back. I had my ankle debulked by the amazing Dr. Spencer at Boston Children&#...
With A Heavy Heart...(A Post as Raw As Mine Come)

* I am currently inpatient for infection as I write this We were on our way there. It shouldn't be much longer than 20 minutes or ...
Relentless Recovery

Hey everyone, So the above picture is one in which I took today to showcase part of the area that was worked on during my most rec...
Last evening

I had a "flare-up" last night and it was absolutely horrific. At the beginning of it, I was so sure I was going to be hospitalize...
Where can YOU find me NOW?

Hi everyone! While it may seem as though I have been neglecting on updating (which I have on this particular blog), I have actually create...

Picture Window theme. Theme images by ozgurdonmaz. Powered by Blogger.