Each day right now feels somewhat
surreal – on January 26th, I will be having 2 procedures
done. One will be the bleomycin injections in my rectal area with an
interventional radiologist who has studied under Dr. Alomari. The
other procedure will be an ankle/foot debulking with Dr. Spencer.
While I have had several chilling medical situations in the past, I
am particularly anxious for the debulking part of the day... however I am in such a momentous amount of pain that a part of me is really just ready to get this whole ordeal over with!
A great deal of people ask me “how I
do it.” The truth is, I do not do any of this alone. I have an
amazing team of people surrounding me that play a huge role in helping to keep me centered. I see a
talk therapist (who is utterly amazing) approximately 3 times a week.
I have a nurse practitioner at the same office who prescribes me
antidepressants and helps to keep my OCD in check (at least, compared
to how my OCD used to be). I have parents, and not just parents, but
incredibly great ones who cater to me physically and emotionally. I
have an amazing team at Children's Hospital Boston. I have family
members who are supportive and loving and infiltrate my veins with
strength. Last, but certainly not least, I have friends and a slew of
vacular anomaly/Klippel friends who breathe life into me day-in
day-out. I really am not doing any of this alone, and for that I am
very much so grateful...
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| Mom and I the other day on a rare outing for me these days - we took my walker. |
It has taken me quite some time to let
go of toxic people in my life (yes, that has unfortunately included
some of my own flesh and blood and people I have been friends with
for several years) in order to reach a calmer state. I despise
confrontation, so often I would just let people walk all over me
despite my feelings continuously getting hurt. My therapist, however,
taught me that there is no room for this kind of energy in life –
especially for someone dealing with a chronic illness as grave as
mine.
So, I know this post is rather short
and I have not written much as of lately, but I wanted to say thank
you. Thank you for all of the people out there who have been such an
amazing support system to me. And, while I do not consider myself to
be in a position to give advice, I will share this suggestion:
surround yourself with a good team. Surround yourself with people who
are competent and kind, and truly have your best interests at heart
and want to see you prevail.
That's all for now,
I will type more soon!
Sending you lots of love,
Arianna
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